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05/01/09
Fibromyalgia Awareness Day
Filed under: Cancun Casa Blog
Posted by: Dangers @ 7:40 pm

(Editor’s note: further information on the Cancun situation can be found in the blog(s) below this one.)

Tonight, we’re taking a break from the madness of swine flu and moving towards another public health issue, one that effects millions of people worldwide, fibromyalgia. The subject is one that is fond to my heart and a health issue that I believe needs more research and study from today’s medical professionals. You see, my mother suffers from fibromyalgia, and I’ve watched her fight this disease for twenty plus years, many of them without benefit of proper medical attention due to lack of correct diagnosis from the medical community at large, who didn’t understand what she was going through, and lacked the research source material to do so. Misdiagnosis is common with this disease, and patients are often ran through a series of medications and therapies, that are virtually useless, sometimes harmful and often left to fend for themselves while medical practitioners scratch their collective heads, running the gamut of probabilities out there.

As such, when asked to help sponsor “Fibromyalgia Awareness Day”, we heartily joined in support with other bloggers aligned with “Bloggers Unite” to throw our support to doing something proactive in fighting the disease and promoting awareness. http://www.bloggersunite.org/event/fibromyalgia-awareness-day

If you wouldn’t mind, take a couple of minutes to read the information below, courtesy of the US National Institutes of Health.

We appreciate you taking the time to stop by and Cancun related information can be found in the blogs below this or by refreshing the blog via the link on the left and toggling down.

Fibromyalgia is a disorder that causes muscle pain and fatigue
(feeling tired). People with fibromyalgia have “tender points” on the
body. Tender points are specific places on the neck, shoulders, back,
hips, arms, and legs. These points hurt when pressure is put on them.

People with fibromyalgia may also have other symptoms, such as:

What Causes Fibromyalgia?
Who Is Affected by Fibromyalgia?
How Is Fibromyalgia Treated?
What Can I Do to Try to Feel Better?
What Research Is Being Done on Fibromyalgia?

What Causes Fibromyalgia?

The causes of fibromyalgia are unknown. There may be a number of factors involved. Fibromyalgia has been linked to:

Fibromyalgia can also occur on its own.

Some scientists think that a gene or genes might be involved in
fibromyalgia. The genes could make a person react strongly to things
that other people would not find painful.

Who Is Affected by Fibromyalgia?

Scientists estimate that fibromyalgia affects 5 million Americans
18 or older. Most people with fibromyalgia are women. However,
men and children also can have the disorder. Most people are
diagnosed during middle age.

People with certain other diseases may be more likely to have fibromyalgia. These diseases include:

Women who have a family member with fibromyalgia may be more likely to have fibromyalgia themselves.

How Is Fibromyalgia Treated?

Fibromyalgia can be hard to treat. It’s important to find a doctor
who is familiar with the disorder and its treatment. Many family
physicians, general internists, or rheumatologists can treat
fibromyalgia. Rheumatologists are doctors who specialize in arthritis
and other conditions that affect the joints or soft tissues.

Fibromyalgia treatment often requires a team approach. The team may
include your doctor, a physical therapist, and possibly other health
care providers. A pain or rheumatology clinic can be a good place to
get treatment.

In June 2007, the U.S. Food and Drug Administration approved Lyrica*
(pregabalin) as the first drug to treat fibromyalgia. Doctors also
treat fibromyalgia with medicines approved for other purposes. Pain
medicines and antidepressants are often used in treatment.

What Can I Do to Try to Feel Better?

There are many things you can do to feel better, including:

What Research Is Being Done on Fibromyalgia?

The NIAMS sponsors research to help understand fibromyalgia and find
better ways to diagnose, treat, and prevent it. Researchers are
studying:

*Brand names included in this booklet are
provided as examples only, and their inclusion does not mean that these
products are endorsed by the National Institutes of Health or any other
Government agency. Also, if a particular brand name is not mentioned,
this does not mean or imply that the product is unsatisfactory.

For More Information on Fibromyalgia and Other Related Conditions:

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Information Clearinghouse
National Institutes of Health

1 AMS Circle
Bethesda,  MD 20892-3675

Phone: 301-495-4484

Toll Free: 877-22-NIAMS (226-4267)

TTY: 301–565–2966

Fax: 301-718-6366

Email: NIAMSinfo@mail.nih.gov

Website: http://www.niams.nih.gov

The information in this publication was summarized in easy-to-read
format from information in a more detailed NIAMS publication. To order
the Fibromyalgia Q&A full-text version, please contact NIAMS using the contact information above. To view the complete text or to order online, visit http://www.niams.nih.gov.

For Your Information

This publication contains information about medications used to
treat the health condition discussed here. When this publication was
printed, we included the most up-to-date (accurate) information
available. Occasionally, new information on medication is released.

For updates and for any questions about any medications you are taking, please contact the U.S. Food and Drug Administration at:

U.S. Food and Drug Administration

Toll Free: 888-INFO-FDA (888-463-6332)

Website: http://www.fda.gov/

3 Responses to “Fibromyalgia Awareness Day”

  1. Paul Blake MH Says:
    May 14th, 2009 at 9:27 am Hi, Interesting, the very people who told fibromyalgia sufferers in the beginning of this disease that it was all in their head are now telling us what to do about it, hmmm. Also what they claim are the causes are actually the triggers not the cause and they conveniently left out medical drugs which are one of the main triggers. That is why once you have an autoimmune disease and you start taking the drugs most people get another autoimmune disease. Is it genetic, well humans are breaking every basic law of nature in the book that is why autoimmune disease is an epidemic. Just a few observations I have made. Have you noticed that modern medicine says they need your money to find a cure and yet they have not found a cure in 60 years, 0. And autoimmune diseases like RA are interesting there are approximately 80 to 100 with another 40 waiting for a name and if you get one you will get another and so on. And medical science cannot explain why we have this autoimmune epidemic. You can trigger one of them just by having an auto accident, taking aspirin or medication or by starting a new exercise routine, even too much stress says latest research. Naturopathic medicine says, “Look for the root, it is in the basics beginning with what is on your fork, what toxins are in your body, what exercise do you do, what stress is in your life, what is your spiritual base”. Scientific arrogance has led us down the wrong path we better stop and take a close look at what is happening. This month 150 new chemicals will be added to the 85,000 which are part of the autoimmune problem. They will be added too industry with no oversight control at all. Autoimmune disease is the worst kind of contradiction; for an RA you are attacking your body with your immune system, a world upside down. God bless you in your search. Sincerely Paul
  2. GarykPatton Says:
    June 16th, 2009 at 3:45 pm I have been looking looking around for this kind of information. Will you post some more in future? I’ll be grateful if you will.
  3. Frank Cook Says:
    June 22nd, 2009 at 6:03 pm I am writing to you from the Pacific Northwest Foundation about a case study that may be of interest to your research into fibromyalgia. While this was not a study undertaken by the Foundation, it was a case with which we have had access to in virtually every detail. This includes the chart notes (with the patient’s approval) as well as the observations and insights of the patient’s health care provider. The case involves an adult female who had been disabled for eight years with diagnosed fibromyalgia. Within four months of treatment, she was able to backpack, regularly work a full day and have little or no pain. As with all our studies, it is our hope to stimulate additional efforts to determine if these results were an aberration or have wider implications. To this end, we wanted to make you aware of the cast study (which can be found online at http://pnf.org/html/fibromyalgia.html), in the hope that it might prove useful as a starting point for research within your organization. Thanks and kind regards, Frank Cook Pacific Northwest Foundation

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